The FOP ITALIA association was founded in march 2006 as a initiative by some families with children affected by FOP and became an ONLUS in the October of the same year (decreto nr 18 of October 16 2006 Assessorato Politiche Sociali Prov. Autonoma di Trento).  

Since 2006 we have joined UNIAMO FIMR  (Federazione Italiana Malattie Rare/Italian Federation of Rare Diseases) Onlus .

Our activity is essentially the support and sending information to the sick patients and their familes, and it occurs everyday of the year. The requested information range from medical consultations, to laws regarding the patient; for the specific information there is a medical referral center that recently began being operational in Genoa. Relatively, assistance in this case comes in a number of way; accompanying to the hospital, organizing medical visits, help with assistance at home and developing medical practices.