AT Society

What is A-T?

 

Ataxia-Telangiectasia or A-T, is a rare and complex genetic disorder. A-T affects a number of different systems within the body causing many symptoms including difficulty in controlling and co-ordinating movements (ataxia), immunodeficiency and an increased risk of developing cancers.

What do A-T Society Do?

 

A-T Society seeks to improve the quality of life and quality of care for people living with A-T while actively promoting research to lengthen lives and ultimately bring about a cure. One of the Society's most important aims is to fund and promote research to find better treatments and ultimately a 'cure' for A-T.

 

A-T Society believes they can best achieve their goals by working in full and open partnership with all those who share their aims, this approach is central to their work.

 

Their mission

 

The ultimate aim of A-T Society is to improve the quality of life for children and adults who are living with A-T, they do this by:

  • Providing information and support to meet the challenges of living with A-T

  •  Working to achieve better, more coordinated health and social care services

  • Promoting and funding high-quality A-T research

  • Speaking out to ensure that the voices of people affected by A-T are heard

  • Raising awareness of A-T and gathering supporters and resources to help achieve our vision

  • While our primary care is for people with A-T and their families friends and carers, we support and work with all those who are affected by and work with A-T.

     

 

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