No Time To Wait

The UK based charity Action For A-T was established in 2012 to speed up the process of identifying a cure for Ataxia Telangiectasia (A-T) or treatments that delay or prevent the disabling effects of this devastating childhood condition.

To date, they have invested £3.1million in 40 A-T related research projects globally and are currently the largest funder of A-T research in Europe. They also provide much needed support to the families living with A-T as there is currently no treatment or cure for the condition. Children with A-T peak physically at 5 years before losing the things we take for granted such as walking, talking and even eating a simple meal. 1 in 3 children with A-T will develop cancer or respiratory disorders at some stage in their short lives and more than half will die before they are out of their teens.

Due to poor lung health and a weakened immune system, children with A-T are at very high risk of severe illness from coronavirus (COVID-19) and the advice for everyone with the condition, is to undertake a rigorous protection regime known as “shielding”. The outlook is horrifying for these families as many will lose loved ones to the virus before the crisis is over.

A-T is a constant threat for the families around the world and the speed at which it devastates their lives means that every second counts. Action for A-T is doing all it can to find a cure or treatment for this devastating childhood condition but we desperately need your help.

Please do what you can to help us at this difficult time because for families watching their loved ones slowly slip away, there is #NoTimeToWait.