Action for A-T

Action for A-T is based in Surrey and was established in 2012 by parents whose daughter was diagnosed with the condition.


To fund medical research to speed up the process of identifying a cure for Ataxia Telangiectasia (A-T) or treatments that delay or prevent the disabling effects of this devastating childhood condition.


A future where the effects of A-T are minimised.  We passionately believe that with increased funding and continued global and collaborative effort, effective treatments for A-T will be developed and the lives of those affected will be changed.


We provide a dedicated funding stream for medical research. Our sole focus is to raise funds for this purpose; as well as working to drive research and awareness of A-T. Over the last few years, we have become the leading charitable funders of A-T medical research in the UK.


Anyone who has a child diagnosed with Ataxia Telangiectasia (A-T) realises immediately and agonisingly that their lives will be changed forever and that the future holds a number of very difficult challenges for their child both physically and emotionally. Founded in January 2012 by parents of a child diagnosed with A-T, Action for A-T understand what that feeling is like and is committed to making a difference to those affected by funding high quality medical research.

In the UK,  research funding for A-T is extremely limited so Action for A-T was established to increase investment in A-T research and raise awareness of the condition. Click HERE to find out more about our research.